Tuesday, August 2, 2011

Sometimes...

I am pretty adjusted to being a bald woman and feel normal most of the time. It is so hot here in Texas that there is little chance of me ever being physically comfortable enough to ever cover my head, so I am more open here than I've ever been before. Sometimes I don't like that because it is hard o have your privacy when you're a bald woman. Wearing a wig can be nice sometimes when I just don't feel like being stared at or having to answer any questions. But for now the uncomfortableness of looking different is more comfortable than the heat than comes from wearing anything on my head.

Mostly people are just curious. Especially children. Little ones will always stare at me unabashedly. At the pool yesterday a little boy, about four, was staring with huge eyes so I asked, "Have you ever seen a woman with out hair before?" He shook his head no. Then he shrugged up his shoulders and held out his hands, "I just wonder why. ?" I smiled and told him why. "Oh," he smiled. Then swam away. Usually the parents are much more uncomfortable than the kids. Walking through Target a few days ago a dad and son, about 8, were walking towards me. "Be good," I heard the Dad almost seethe at his son, and nudge him, as they approached me. I could tell that the Dad was giving his son a warning not to say anything untoward about me. The son curled his lips shut and just stared as they walked past while the dad smiled and jabbed his son's arm again.

At the pool one evening last week, I was swimming for some exercise, as I am wont to do these days. When I first arrived, I took off my swim dress to get in and a father and daughter from Ethiopia were sitting on some lounge chairs. I heard her say, "Is that a boy?" I laughed and lightheartedly said, "I am a girl. I just have no hair." But the Dad was beside himself. I should have just pretended I didn't hear her. "I'm so sorry. I'm so sorry. Of course you are a woman. I am so sorry, " then to the little girl, "Tell this nice woman you are sorry! SAY SORRY! Of course she is a woman! Say sorry to her right now!" I tried to assure him it was quite all right and I knew she was just curious, but he was very upset and even after I swam a few laps, when I paused at their end to readjust my goggles, he made the little one come over to me again to apologize.

Rarely does anybody do or say anything to me that I think is purposefully meant to be mean. But sometimes remarks hurt. At Wal-Mart on Monday a little girl, probably 6 or 7 said loudly, "Mom! Look at her head!" She said it with a really disgusted tone and it did not really feel great to hear.

But sometimes, people really are just mean. I was leaving a store a few days ago and a group of older teenage boys were sitting at a table. One stared at me with a smile/smirk, while he dramatically and slowly dropped his mouth open and nudged a friend to look at me. He then guffawed as they all turned to look at...the freak. At least that is what I felt like. It caught me off guard--in one of those moments where I just felt like a totally normal person, going about her errands. And in just that split second I went from normal and fine to feeling completely vulnerable and exposed. The thought came to me, "Oh. I forgot. I am a freak show." And it stung pretty bad for a little while.

My life is good and blessed and full. I have a happy life. But life has its hard moments. And sometimes I just really miss my hair.

9 comments:

Nancy said...

arrgh. So many thoughts. Mostly I think they are all easier to say chatting over the phone. It is hard as parents, isn't it? I've heard Kathy say she just prefers when someone just asks about Mitko, etc. and I'm sure you prefer that -- like the cool kid who just wondered why, but I never know if that is how everyone feels. But, it does sadden me that some people are truly simply mean and ready to be cruel about ANY difference. I mean why would boys do that? What if, like so many people wrongly think, you did have cancer. What if you were about to die? How could people exist inthe world who could be so heartless and well, lame? But, I hope you do know that for every rare person who thinks or says something mean, there are probably 5000 who admire and notice in a way that is like, "Awesome." Really, I always feel extra cool when I am somewhere with you and your bald head, or I remember being with you and Mary at the dam, and feeling cool to be in a group where I knew people were likely noticing and staring, but thinking, "Cool. I wonder what the deal is? Those girls just seem so awesome and cool and beautiful and I wish I knew their story and why they are bald." That's what it is. I think most people are intrigued. Yes. That is exactly the word. Sometimes it probably gets old being intriguing, but I think that is why you are able to then make a difference in so many lives. They notice you, are completely intrigued, and then are open to all the amazing coolness one gets to expereince by knowing or talking to you and getting a few of your insitghts or perspectives on the world. In the mean time, when you do go back to boring old non intriguing, could you keep your hair super short like it was at that pic of my wedding for a bit? I forgot how awesome that super short look was on you. Love you!!!

Mandie said...

Shannon, you are GORGEOUS! I am humbled by your strength, and bravery and openness. I don't know what its like to not have my hair, but I do know what its like to have children who are "different" because of their hearing aids. I know what its like to get looks and ignorant comments. I hope that when Abby and Carter advocate for themselves that they are able to have the same resilience and positive attitude about their differences that you have.

I know you probably hear this over and over, but you are such an inspiration!

LoGunns said...

I love your openess. I love your strength. I love you.

jami v. said...

ah, shannon. you are amazing.

Mugsy said...

I know you didn't write this to make anyone feel bad for you, but I am crying because I love you so much. I wish I could have dragged those creeps out of the place by their balls. I just can't help but think we live in such a diverse world that people would't even be phased by hair. But no matter how strong and brave you are, no one wnats everyones attention all the time. You have had some beautiful hair and that is hard to have gone. But rest assured you are the most beautiful girl regaurdless of hair. I love you so much. m

Shannon said...

thank you all for those kind comments, dear friends of mine! (and sisters) nancy, i like that people are intrigued by me. that sounds much better than curious or anything else really. you are all too kind to me.

Shannon said...

and yes, nank, that short hair was super cute, huh?

Nancy said...

Yah, I wasn't making that up. I was trying to think, "what exactly is the word that describes what I know people are thinking when they see you?" and I knew. It was "intriguing" -- and I doubly knew it because the other day I saw some girl with her boyfriend at Wal-Mart and she was bald and I wanted to stare and stare even though I knew I shouldn't, but I wasnted to because I was totally intrigued and wanted to know who she was and if she had alopecia or cancer or simply was bold enough to just shave her head. It was kind of like how you'd feel seeing a star and knowing they would be annoyed if you approached them, but wishing they wanted to talk to you all the same.

Anonymous said...

Shannon,
You are truly amazing and my inspiration! Thanks for your openness and willingness to share your story with everyone and especially with those of us that are "intriguing", but not ready to share that with others.
Love you, Laurie