You will need to listen to this song while you look at these photos or it won't make as much sense. I want to dedicate this post to those of you who have supported me and loved me through so many difficult times. I am so grateful to have come to this "place" where I do not constantly feel that I have to measure myself against others.
Recently I wore a wig to Deedle's dance class and nobody recognized me. At first I thought it was strange, but then I decided that I liked it. I thought that maybe if I switch around more then people will realize that if they want to recognize me, they are going to have to do it by some other way than my hair or scarf or whatever it is that usually tags them off. Choose my big old booty or my nearly 6 foot height or my smile, but I no longer allow myself to be defined by my hair (or lack thereof). With this in mind, I am considering buying a blond wig. Everybody thinks that Nancy and I are twins anyway, and she looks gorgeous as a blond, so I may just try it for fun. Ya'll are just going to have to remember
that "I am not my hair" next time you are trying to track me down!Oh, and also, somebody asked if I had bruises on my head. The dark spots you see are typical of Alopecia Areata. These are actually spots of hair that have grown back but as they are not enough to actually cover a significant amount of my scalp (yet), I keep my head shaved smooth.
By the way, my sister Amy took these photos for a book that a lady with Alopecia is doing. I need to e-mail her my "story" now, so I better get to work on it.
Wednesday, May 28, 2008
I Am Not My Hair
Posted by Perla at 10:17 PM
Labels: alopecia areata, inner beauty
Subscribe to:
Post Comments (Atom)

23 comments:
What beautiful pictures!
The images radiate such depth, beauty and strength.
Sheesh you look freakin' gorgeous in those pics. Awhile back you mentioned how you look better in photos than in real life, and I forgot to tell you, that I thought, "I know what she means, because I really do look better in some photos than real life so when I put them on my blog I feel sneaky, but Shannon just thinks that because it would be hard for anyone to look at their gorgoeus self in their pics and believe they really could look THAT good, but she actually REALLy does, in real life." I'm serious.
Yes, get a blonde wig, I've always thought it might be kind of fun if you just wore all kinds of different wigs . . . not that you think it would be fun, but it would be fun for me to see you looking all these cool looks.
Only . . . now that you are so comfortable and happy with how things are, I wish you would quit covering up for Chancho by telling those lies abou the bruises on your head being common in alopecia . . . you may as well just say you fall and land directly on the top of your head a lot. Oh, I am sorry, here I am chuckling away to myself while everyone else reading this is wondering how I could be so cruel and why I could turn something beautiful into sillyness. Sigh, but I still laugh at the idea of you falling on the top of your head. Sorry. I love you though!!And SG better get ready to be forced to be Daisy's best friend soon.
I cannot wait to see you as a blonde!
Oh that was wonderful but for some reason the "pompous" music or whatever a good description for graduation music is made me laugh...Yaaa for graduating to this new level in your life...I hope the story the lady is writing will be titled.."I am not my Hair"...that is perfect. Yes, of course get a blonde wig..why ever not?? Easier than dying one's hair and then perhaps hating it...will it be long, medium or short..oh the things you can do with a wig...isn't that a kids book...wait what really is that title, "oh the wonderful things you can do with.....????? help...bonk, bonk, mush-brain, think, think....I cannot, I will not I am too weary and old with itchy skin....bye, bye....
Oh wait...now it is different music to this post..the graduation music must have been for Miss G...oh why does the music never work for me...so now the music fits..
you are one hot mamma. With or without hair.
so beautiful! :)
ps-very great song
and i love the graduation post. what fun times... and sweet siblings
Wow! You looked absolutely beautiful in those pictures as you do in real life! This is awesome Shan, I am so ecstatic that you KNOW you are not your hair and that you ARE your soul that lives within. Perfect song. Perfect post. I love you!
I love you, I love you, I love you!
Yea your beautiful and all, but sheesh the photography is AWSOME!!!
Love ya...
You are so beautiful you take my breath away. You are my inspiration you know in so many ways. I love you, Heather
Amazingly beautiful pics. I love how you are happy with yourself no matter what your hair may be doing. It's so hard not to let our looks define who we are - whether it is our weight, or the body part that we are self conscious about - I have several. I love your attitude!
It was great to meet you at the park on Wed. I've been lurking about for a few months now (thanks pooka) and enjoy your thoughts and such. Great photos! Hope to hang out again sometime.
Perla, You are absolutely beautiful, with hair or not, your inner beauty just seeps out of your pores. I LOVE that you are not defined by your hair. There was a radio station here that threw out the statement, "Define yourself in 5 words." You did so wonderfully! I have yet to come up with mine.
As far as wigs go, I think you'd be fabu in a great RED wig! A cute, short and sassy red wig.
Man Shan, These pics are so beautiful. I love you and am so happy that you are my sister! By the way for some reason everyone was talking about the article you wrote but I haven't seen it....
Love you
Dang, girl! You are smokin' hot!! Those photos are awesome. I think you are right that the solution to my problem is to just take a bic to my scalp and go with the Perla trend. I love these :)
Hi Shannon..
Your cousin, Lorie, here. I love reading your blog..keeping up with your beautiful children and reading all of your thoughts. I LOVED these pictures of you. (way to go, Amy!!)
Love ya,
Lorie
Perla,
I just wanted all your family and friends to know what an inspiration you are to others who have alopecia! You are such an amazing person with a perfect outlook on life and what is really important. Thanks for being beautiful inside and out.
LP
Well, my goodness aren't you the beauty!!! I come back from vacay feeling all good about myself and how I have some color attached to my white self and then I look at your blog and see the most beautiful person in the whole big world and, surprisinlgy, knowing me and my uncanny knack for noticing things, I DON'T even notice you don't have hair - really, I didn't, because I was too busy noticing your smile and your eyes and the joy radiating from you! Dang you are a hot momma!
You know, its funny, well not funny ha ha, but interesting that when I first started lurking on your blog and figured out that you were that girl I know once and who, gasp, didn't have hair anymore, I came back to see because, you know, I knew you and you now had no hair...but somewhere between the gasp and the laughs I have actually forgotten that you didn't have hair. And there is a reason for that, my dear, and it is because you are absolutely not your hair!!!! And I love that you have taught me that about everyone!
Thank you dear beatuiful one!
I missed you while I was gone!
And I think you should be like the boys in the hood and carve messages in your growing back hair!
Things like:
Got Locks?
Permed in Personality!
And then wear a hidden camera to get people's reactions. I would so do it!
Love your guts - not your hair or lack there of!
Thank you all so much for all of this nice comments! What a wonderful thing for me to come back and read whenever I have a down day! You are all great friends!
New to your blog...although I have read your comments at Oysterblogger's blog...you are absolutely gorgeous!!!
Well Hi! I notice that you comment a lot on J-Dude's site, so I thought I'd find out about you, and lo-and-behold, it's YOU! "Wait", I said, "I know you!" Just thought I'd say hi. You and your family are beautiful. It's fun to "time-warp" and see people all of a sudden grown up and being all adult-ish! Nice to see you!
Post a Comment